Whether you’re living with Duchenne, Becker, limb girdle muscular dystrophy, or another neuromuscular condition, you know that each day brings different challenges. The progressive nature of these conditions means constantly adapting, learning new ways to do familiar tasks, and facing uncertainty about what comes next.
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Muscle movement disorders and muscular dystrophy are medically complex and progressive. Our nurse led organisation ensures your care is always clinically appropriate, safely delivered, and coordinated with your medical team. This isn’t basic care,it’s specialised support that understands the nuances of neuromuscular conditions.
You’ll have one consistent person who knows your condition, understands your goals, and coordinates your entire support team. As your needs evolve, your dedicated contact ensures your care plan evolves too. No call centres, no constantly explaining yourself,just personalised support from someone who truly knows you.
Neuromuscular conditions require ongoing learning and adaptation. Our support workers receive continuous professional development through our connection to advanced training providers, ensuring they understand the latest care techniques, equipment, and approaches. Your team is expertly prepared for your changing needs.
We believe in honesty and finding the right fit. If our services aren’t what you need, we’ll tell you and help you find better options. Your wellbeing comes before everything else. That’s our commitment to ethical, transparent care.